Aha e whanau he tamaiti e ki Down syndrome - he pātai e kore e i whakahoki

ataata Sunny, he titiro o te ohorere kanohi te wakapū, ihu, pātene me maihao hauwarea ... tamariki ki Down syndrome lhianga rite tahi. I roto i te hapori, e tukinotia ratou i pai tupato, me ngā mātua maka ētahi wā kamo sidelong, i mohio i roto i te whanonga "raweke" i roto i te hapūtanga. Heoi, e kore e pera.

Aha e whanau he tamaiti i te Down syndrome? Hei kupu i te pūira 21th anō (i roto i ētahi wā, tona wahi atu). Ko te hara o te mau metua i roto i taua i reira he tino kahore. Just no te mea ka tahuri atu nga huru me te tamaiti ki te kia 46 hei utu o 47 pūira. Na reira, e taea te whanau te tamaiti ki a Down syndrome i roto i tetahi whānau - a haurokuroku, me tika te nuinga. whai hoki āhuatanga taiao e kore pānga i runga i te tūponotanga o te takanga o tenei syndrome. Ko te mea anake e whakatupato tākuta, ko e faarahi te tūponotanga o te whanau ana solar ki tau whaea. E ai ki etahi pūrongo, te tau o te popa hoki kua he tetahi mana (rawa, ki te he neke atu i te 42 tau i ia).

Ko te pātai o te aha whanau te tamaiti e ki Down syndrome, e hoatu nga matua nga tamariki solar katoa. Ka rite ki kua whakahuatia, tino maha he mea noa te ahua o "hape o te natura", rite ki te hua o nei i te wā wawe rawa o te whanaketanga e kore e wehea pūira. I roto i te wā tino onge, whakawhanake tenei syndrome i roto i te tamaiti e tika ana ki te meka e kua mama ia papa ranei etahi huringa i roto i te karyotype, a ka he te kaikawe o translocations Robertsonian. A pera he mea nui e kore e ki te tiki i te whakahoki ki te pātai e pā ana ki te aha whanau te tamaiti kei te ki Down syndrome, engari e pā ana ki nei puka o tenei mate he tamaiti. Mai i tenei rawa nui tei. Whakaotia te puka, me te mosaic - ko reira te aituā, e kore e tupu ano te tohu mōrahi o te tūponotanga (e pā ana ki 99%), me pera e taea te mau metua te whakamahere humarie te hapūtanga muri. He translocation o pūira 21 mata ki te putanga o te syndrome o pera-ka karanga te utuafare, i roto i nei take i te tūponotanga e ka kia atu tamariki reo taketake, faarahi nuinga.

tamariki whanau hou ki Down syndrome noa tata te nuinga i mahue i roto i ngā hōhipera i raro i te "pekanga" o te kupu "hoa" rata ( "Ka kore e ia oti," "te reira noa te huawhenua", "tonu taitamariki, whanau hoatu hou", "i koe te taua kua tamariki noa, he aha e hiahia ana koe i tenei "). He noho i roto i te institution kāwanatanga kino noa mo enei tamariki, mo taua mea, a mo etahi atu. Aua'e, i tenei ra te huru o te iwi ki nga kiddies ra āta huri. I roto i nga whenua pou-Soviet he ahua pōturi atu i roto i te Te Hau-ā-uru, engari ahakoa.

I tua atu, i reira e maha ngā huarahi ki te tātari syndrome o Raro i roto i te hapūtanga. Tenei ultrasound, me āta, me te amniocentesis (ko te tika tino te tikanga muri, ētahi tukua amo anake te oraraa o te syndrome). A i roto i te take o te wahine tātaritanga haamauraa tangohia e taea te whakatau me pehea ki te tukulotoa atu te tamaiti, a ka e pā ana ki te materoto.

Ki te whanau te tamaiti i ki Down syndrome, e hiahia reira whakamātautau tupato. No te mea te pi taua tino maha ki raruraru ngakau e rapua e wawaotanga hāparapara. A haunga taua, e hiahia ana ratou ki te aroha e taea anake te hoatu i roto i te kāinga. Anake i roto i tenei take, ka taea ki te whakamatau ki te ao e he nehenehe o nui ratou kuao solar. Kia aroha mai, e kore e taea ki te matapae me pehea e whakawhanake reira tetahi te atu tamaiti ranei - pea te tauari tino rerekē i te retardation hinengaro ngawari ki te whai wāhi ki te ako ki te whakahaere i te hōtaka i roto i te kura tonu ki te kino hauātanga hinengaro. Heoi, ko te aroha me te tiaki - Ko reira te tahi mea kahore nei kia tamariki kore e ora tika.

Aha e whanau he tamaiti i te Down syndrome? Ngā mātua o enei tamariki, me te hunga e kua hopoia mai puta noa ratou, mea ratou e he rerekē hinaaro atawhai me te ngakau nui e he pai ki te hoatu i to ratou aroha ki te ao katoa i enei tamariki. Ko te aha e huaina ratou solar. A pea e whanau ratou ki te iti mahana tenei ao, me te hoatu ki a ia te aroha mutunga ...